Hi everyone. I just wanted to drop all of you a quick line about Elizabeth. As you probably already know, she had her first round of chemotherapy on Wednesday. She felt pretty good yesterday - even went into work and played at the salon for half a day or so. Overall, I think the first 24 hours went about as good as could be expected. She slept well last night so that was a good thing (thank goodness for phenergan!)
Unfortunately, she is feeling all that good today! Booooo! She said she is nauseated and has a headache! I know that she is really fatigued so when I left for work she was going to try and lay down for a while. The other anti-nausea medication - zofran - has slightly mitigated the symptoms for now but she still feels uneasy. I know this is the downside of chemo so it's likely just the first of many days over the next few months that will be kind of rough for her. I am hoping that she will bounce back pretty quickly - she has been drinking lots of water and eating as much as she can - all good things. We bought her some chocolate shakes (Ensure and Special K) and I think she'll try those out if she doesn't feel like eating very much.
I guess that this comes with the territory but it sucks! I desperately wish that I could trade places with her but I suppose the best that I can do is help her out as much as possible. She's a tough woman - more than she knows so she'll be fine in the long run. I know that so many have texted or messaged her over the last few days. If she hasn't sent anything back - just know that she has tried to keep up. I'll see if there is anything that she needs me to follow-up with when I get home from work.
I'll keep everyone updated on the next 24-48 hours. That's all for now folks!
Adios,
Scott
Friday, September 30, 2011
Wednesday, September 28, 2011
First day of chemo in the books (9/28)
Soooo....I know everyone is dying to know what the doctor said. Well, I said lots of things today! I know, a pat on the back to myself (Ph.D...not THAT kind of doctor, right?!?) Ok, ok, ok I give in. The oncologist came in (about 90 minutes late - surprise surprise!) and talked to us in his typical low-key, level-headed manner. This guy wouldn't change demeanor if the building was on fire...at least it seems that way! Ha. He first told us that there was no lymphoma detected in the bone marrow. Yay! Then he gave us the BUT! But we also did a PET scan and unfortunately there were enlarged, active lymph nodes in the neck (right side) and under her right armpit as well a few tumors in her chest, around her lungs. ANNNNDDDDD....just spill it already Doc! Fortunately there were no signs of lymphoma in her abdomen, groin, organs! Sweet! Elizabeth and I were both ready for at least Stage IIA. That's what we were praying for! Ask and (sometimes) ye shall receive! He said the nodes in her neck were very small - he wouldn't have even recommended getting the ones on her left neck biopsied because they were so small. He said that we caught the cancer early and that her chances of a full cure were really good...90+% or so.
The long wait was worth the news, all things considered. Although it may seem strange to others, we feel blessed that this was the news today. I can't begin to thank everyone for their support of Elizabeth. She has been such an inspiration to me and I hope that one day her fight will help others in her situation...she will have such a great story to tell! Dr. Pallera stated the same thing we were initially hoping for...3 months of AVBD! And I made a mistake a few posts ago. Apparently ABVD will be given all at once every two weeks. Not the AB on day 1 and then VD two weeks later. All at once - oh joy! He wants to do another scan in 6 weeks and another after the cycles are over. If all goes well, then radiation would start within a month of the end of chemo. However, we will meet with the radiologist and go over the risks of radiation versus a few more months of chemo. Still a toss up for me but we'll just see how she feels after the first 3 months.
I must say, the people at West Clinic are AMAZING! From the nurses to techs to patients...all wonderful! I suppose that it helps that the patients are all going through a similar situation. They are all willing to share their stories and give advice. What a blessing to have people so willing to make your journey that much more comforting! Truly an experience that we will never forget. I can assure everyone of this...cancer patients are some of the strongest human beings on this earth! Maybe not brute force but inner strength that can only be called upon in the most dire of times! When all things seem to be dark around them, somehow they see that little ray of light and focus solely on it. For that ray of light is hope and without hope then they are just existing...not living.
So, in closing for today, our journey (mainly Elizabeth's but I'll tag along) begins! We are hopeful that everything turns out like we want but are ready to take things in stride should something go off-course. We have the greatest family and friends that anyone could ask for! Believe me, your thoughts and prayers are making quite an impression on Elizabeth! We can't say thanks enough!
I'll drop in the next post to give everyone the 411 on how she feels over the next few days! I suppose chemo won't be all that fun but we are 16.67% of the way home! I know, I know...I'm a freaking math nerd! Oh well, you guys love that! That's it for tonight. Check back soon!
Again, with much love,
Scott
The long wait was worth the news, all things considered. Although it may seem strange to others, we feel blessed that this was the news today. I can't begin to thank everyone for their support of Elizabeth. She has been such an inspiration to me and I hope that one day her fight will help others in her situation...she will have such a great story to tell! Dr. Pallera stated the same thing we were initially hoping for...3 months of AVBD! And I made a mistake a few posts ago. Apparently ABVD will be given all at once every two weeks. Not the AB on day 1 and then VD two weeks later. All at once - oh joy! He wants to do another scan in 6 weeks and another after the cycles are over. If all goes well, then radiation would start within a month of the end of chemo. However, we will meet with the radiologist and go over the risks of radiation versus a few more months of chemo. Still a toss up for me but we'll just see how she feels after the first 3 months.
I must say, the people at West Clinic are AMAZING! From the nurses to techs to patients...all wonderful! I suppose that it helps that the patients are all going through a similar situation. They are all willing to share their stories and give advice. What a blessing to have people so willing to make your journey that much more comforting! Truly an experience that we will never forget. I can assure everyone of this...cancer patients are some of the strongest human beings on this earth! Maybe not brute force but inner strength that can only be called upon in the most dire of times! When all things seem to be dark around them, somehow they see that little ray of light and focus solely on it. For that ray of light is hope and without hope then they are just existing...not living.
So, in closing for today, our journey (mainly Elizabeth's but I'll tag along) begins! We are hopeful that everything turns out like we want but are ready to take things in stride should something go off-course. We have the greatest family and friends that anyone could ask for! Believe me, your thoughts and prayers are making quite an impression on Elizabeth! We can't say thanks enough!
I'll drop in the next post to give everyone the 411 on how she feels over the next few days! I suppose chemo won't be all that fun but we are 16.67% of the way home! I know, I know...I'm a freaking math nerd! Oh well, you guys love that! That's it for tonight. Check back soon!
Again, with much love,
Scott
Tuesday, September 27, 2011
Portacath day
Just wanted to give everyone a quick update on how I was doing......
I now have my portacath put in for easy access for receiving my chemo, and all the other blood drawing things that I will be doing in the next several months to come. I have taken my meds and been icing the area since I got home from the hospital. I am still feeling fine, I'm just a alittle sore....ok so maybe alot sore, but I'll survive. Scott did homework with Anna. Then bathed and fed both kids. He has been a wonderful help to me lately. I'm sure when he has to wake up with Lyla in the middle of the night to fix and feed her a bottle, I'll hear him mumbling a few choice words under his breath.....lol. He is convinced that she wakes up way earlier every night he has to get up to feed her than she does for me.(funny huh?) What he doesn't know, is that he is normally snoring, with drool coming out of the side of his mouth when I have to wake up with her every other morning with her.....ok, ok, so maybe I'm exaggerating about the drooling;)
Tomorrow is the big day. I will meet with my oncologist (Dr. Pallera) to go over my PET scan results, find out my staging, and receiving chemo for the first time. I'm packing up all the things that everyone has been telling me to bring. Books, I-pad with some movies and earphones, blanket and some sour candy so I can't taste the chemo. Hopefully I have it all covered. If anyone can think of anything else for me to bring, text me. They might laugh at me if I come in there with some rolling luggage though, so trying to pack lightly.
I love everyone so much!!
Elizabeth
I now have my portacath put in for easy access for receiving my chemo, and all the other blood drawing things that I will be doing in the next several months to come. I have taken my meds and been icing the area since I got home from the hospital. I am still feeling fine, I'm just a alittle sore....ok so maybe alot sore, but I'll survive. Scott did homework with Anna. Then bathed and fed both kids. He has been a wonderful help to me lately. I'm sure when he has to wake up with Lyla in the middle of the night to fix and feed her a bottle, I'll hear him mumbling a few choice words under his breath.....lol. He is convinced that she wakes up way earlier every night he has to get up to feed her than she does for me.(funny huh?) What he doesn't know, is that he is normally snoring, with drool coming out of the side of his mouth when I have to wake up with her every other morning with her.....ok, ok, so maybe I'm exaggerating about the drooling;)
Tomorrow is the big day. I will meet with my oncologist (Dr. Pallera) to go over my PET scan results, find out my staging, and receiving chemo for the first time. I'm packing up all the things that everyone has been telling me to bring. Books, I-pad with some movies and earphones, blanket and some sour candy so I can't taste the chemo. Hopefully I have it all covered. If anyone can think of anything else for me to bring, text me. They might laugh at me if I come in there with some rolling luggage though, so trying to pack lightly.
I love everyone so much!!
Elizabeth
Sunday, September 25, 2011
Ahhh...the week of hell (9/25)
Well, I am certain that this week HAS to be better than the one that just ended. First, the news of Elizabeth's illness, then I've been sick (little thing, I know!), and then we found out that my grandfather passed away yesterday! Man, things seem to snowball when it's going bad! I don't want any pity - heavens knows that there are others in this world that are dealing with far worse than I am. It's just been one of those weeks destined to make my bottom 10. Our grandpa (GP for short) was one cool cat. He was kind, giving, and loving of all of my cousins and I - a big teddy bear. I guess what I'll miss most was watching him and Anna play. Gosh, he loved her soooo much. It was a privilege to call him my grandpa and for all the time I got to spend with him, I will be forever thankful. I know that he is in a better place, especially since the last year or so had been a struggle for him. See ya on the other side, GP.
On to the weekend - so far so good. Although I haven't felt good, Elizabeth has. She is dealing with the biopsy quite well. Much better than anyone could have expected. Of course, she worked all day yesterday. She sure does love her clients! She has been just a little sore - so I guess I am now not the only pain in her ass (although she may disagree)! My sister, Grace, and her boyfriend, Craig, came up here on Wednesday. I can't begin to thank them enough. It has been so helpful to have them here - and quite a good distraction from the chaos in our lives right now. We got to watch the LSU game last night. In typical LSU style - we made it close and then dropped the hammer! Love this team. They make me smile (and bite my nails)! We are getting ready to watch the Saints game - and I'm getting ready to take down Rance in fantasy football. When you read this Mr. Little - you'll be on your way to 1-2 whilst the man, aka Scott, goes to 3-0. Does anyone care about my fantasy football team? Didn't think so...oh well. Had to throw that in there. Karma will likely laugh at me and we'll both be 2-1 after the weekend.
The week ahead will be a stressful one - doctors appointment tomorrow, Elizabeth's surgery to place the port Tuesday along with GPs funeral, and then chemo starts on Wednesday. But you know what - we are just going to tackle this thing head-on! No doubt that things have been bad but it makes us appreciate the good ones so much more. How could anyone ever know if things are bad if they haven't been good before? Well, we have had a blessed life so this puts it in perspective for us. Although losing a family member is awful, we got to know him and love him for so long. That is something that a lot of others don't have and for that we are grateful.
In leaving I want to share a saying that I read on another blog, a guy named Jeff Guyer, who lost his battle with sarcoma in June. His blog was the inspiration behind me doing this for Elizabeth. It seemed therapeutic to him and it has been for me. He used the quote, "Breathe in hope, Breathe out love!" I love this quote. Hope you do too!
On to the weekend - so far so good. Although I haven't felt good, Elizabeth has. She is dealing with the biopsy quite well. Much better than anyone could have expected. Of course, she worked all day yesterday. She sure does love her clients! She has been just a little sore - so I guess I am now not the only pain in her ass (although she may disagree)! My sister, Grace, and her boyfriend, Craig, came up here on Wednesday. I can't begin to thank them enough. It has been so helpful to have them here - and quite a good distraction from the chaos in our lives right now. We got to watch the LSU game last night. In typical LSU style - we made it close and then dropped the hammer! Love this team. They make me smile (and bite my nails)! We are getting ready to watch the Saints game - and I'm getting ready to take down Rance in fantasy football. When you read this Mr. Little - you'll be on your way to 1-2 whilst the man, aka Scott, goes to 3-0. Does anyone care about my fantasy football team? Didn't think so...oh well. Had to throw that in there. Karma will likely laugh at me and we'll both be 2-1 after the weekend.
The week ahead will be a stressful one - doctors appointment tomorrow, Elizabeth's surgery to place the port Tuesday along with GPs funeral, and then chemo starts on Wednesday. But you know what - we are just going to tackle this thing head-on! No doubt that things have been bad but it makes us appreciate the good ones so much more. How could anyone ever know if things are bad if they haven't been good before? Well, we have had a blessed life so this puts it in perspective for us. Although losing a family member is awful, we got to know him and love him for so long. That is something that a lot of others don't have and for that we are grateful.
In leaving I want to share a saying that I read on another blog, a guy named Jeff Guyer, who lost his battle with sarcoma in June. His blog was the inspiration behind me doing this for Elizabeth. It seemed therapeutic to him and it has been for me. He used the quote, "Breathe in hope, Breathe out love!" I love this quote. Hope you do too!
Friday, September 23, 2011
Bone Marrow Biopsy
I just wanted to drop a line to everyone and let you guys know that her bone marrow biopsy went extremely well today. I was very nervous about the procedure - mainly because I didn't want the entire treatment program to get off on the wrong foot. I had heard some not-so-wonderful things about this procedure and I was afraid that it would be a lot more painful (physically) than many of the things that she will have to endure. However, she made it through like the champ that she is. She told me (in a very loopy state) that she didn't feel much at all. The sedatives had her in la la land. I just smiled because my prayers for her comfort were answered today.
We'll keep you posted on other things. She is having her echocardiogram done right now. That should be pretty easy. Heck, most things seem easy for her - from a physical standpoint. She says she can't tolerate that much pain. I just laugh. She never cries or moans about pain...she is one tough little cookie. Love that woman.
That's it for now. I'll check back in soon.
Keep sending those prayers and good thoughts this way...they are helping tremendously.
Thanks everyone,
Scott
We'll keep you posted on other things. She is having her echocardiogram done right now. That should be pretty easy. Heck, most things seem easy for her - from a physical standpoint. She says she can't tolerate that much pain. I just laugh. She never cries or moans about pain...she is one tough little cookie. Love that woman.
That's it for now. I'll check back in soon.
Keep sending those prayers and good thoughts this way...they are helping tremendously.
Thanks everyone,
Scott
Thursday, September 22, 2011
First Appointment at West Clinic...
Today was the first time that I walked into the West Clinic. (the cancer facility in Memphis ). It was very tough for me. There I go again feeling sorry for myself. I just looked at the people in the waiting area and I immediately felt like I didn't belong there. It was filled with nothing but old people and completely bald cancer patients. Like I said before, I don't feel sick!! It's hard to believe that you have cancer when you feel totally normal. I am really working hard trying to be very positive and to put everything into God's hands. In these beginning stages it is a little difficult, because there is still some unknowns. Until I get my PET scan results, I won't know if the C is just in early stage 2A. Just praying every second that it is.
On the other hand, I have a absolutely wonderful husband that has been my rock through all of this. I thank God everyday for giving me such a wonderful person to go through this with me. My family is been extremely supportive, and have been rearranging their lives for me. My girls are what keep me strong. All I have to do is just look at them and I instantly have the energy to keep on truckin'. The one thing that makes me the most sad, is that I don't want Anna, at 5 yrs. old, to see me sick. She has a very mothering nature, and will be trying to take care of me. It's just hard realizing that for the next several months I won't be able to be the mother I want to be. I do know my kids will be well taken care of so I am trying to block those negative thoughts when they come.
Tomorrow is my bone marrow biopsy. I hate pain, so I am scared. Big needles suck, but I guess I better get used to needles...right? Until next time.........I'll leave you with alittle inspiration I read in a book today.
"when you are in a difficult place, realize that the Lord either placed you there or allowed you to be there, for reasons perhaps known for now only to Himself."
Elizabeth
On the other hand, I have a absolutely wonderful husband that has been my rock through all of this. I thank God everyday for giving me such a wonderful person to go through this with me. My family is been extremely supportive, and have been rearranging their lives for me. My girls are what keep me strong. All I have to do is just look at them and I instantly have the energy to keep on truckin'. The one thing that makes me the most sad, is that I don't want Anna, at 5 yrs. old, to see me sick. She has a very mothering nature, and will be trying to take care of me. It's just hard realizing that for the next several months I won't be able to be the mother I want to be. I do know my kids will be well taken care of so I am trying to block those negative thoughts when they come.
Tomorrow is my bone marrow biopsy. I hate pain, so I am scared. Big needles suck, but I guess I better get used to needles...right? Until next time.........I'll leave you with alittle inspiration I read in a book today.
"when you are in a difficult place, realize that the Lord either placed you there or allowed you to be there, for reasons perhaps known for now only to Himself."
Elizabeth
Elizabeth's update from today (9/22)
Hi all - be on the lookout for Beth's first post. She wrote something about her first trip to West Clinic. It's really good.
Scott
Scott
Wednesday, September 21, 2011
Just a few thoughts! (9/21)
Interestingly, I never really set out to do a lot of posts on this blog. The main purpose was/is to update everyone on Elizabeth's condition. Having said that, I know that one day someone may be going through the same thing that we are so I thought it might be good to just do a little brain dump and let everyone know what's going through my mind as we approach the starting line.
Each day that passes with the news that your loved one has cancer brings a weird dynamic. I feel stronger yet more nervous. Maybe nervous is the wrong word - maybe its anxious. I have great faith that while this will be an arduous journey we will prevail. I am ready to start the journey and amazingly, Elizabeth is as well. She has been so strong through this process, it has left me stunned. You always look at others that are dealing with tragic things in their life and wonder how you would feel if you had to trade places with them. I've always, and I mean ALWAYS, been in awe of how people respond when diagnosed with cancer. It is like a braveness comes over them that astonishes me. I've felt that with Beth...she has taken the news like a champ. She's ready. Let's not get it twisted...we have our moments. But they are much further apart than I imagined.
So - I have to confess that I am slightly obsessed with being prepared for this ordeal. I can't begin to tell you how many blogs, journal articles, and message boards that I have read over the past few days. Ok, so I'm a nerd! I feel like there is so much I am missing even though I've read so much. I want to make sure that I am prepared...not so much with Elizabeth. I want to make sure that I stay steady and as close to grounded as I can be. It's almost an OCD-type condition. Haha. Man, I need to play a round of golf or something. What I have learned, though, is that everyone responds differently. So, we'll take it one day, one treatment, at a time. Seems like the best way to approach this.
For anyone that reads this one day and has a major issue in your life...remember to take a deep breath and realize that there are others who have been there and have pulled through. Every story that we read of those that have made it through cancer treatments and are living and loving life gives us a major jolt of inspiration. And each of these stories keeps the positive vibes flowing. That, combined with our trust in God, will see us through.
I want to continue to thank everyone for the support. I have talked, texted, emailed, facebooked (is that a word? Lol), and communicated via carrier pigeon (you know who you are...don't deny it!!!) with sooooo many people. You have all warmed my heart and filled Elizabeth and I with joy. You always feel that a lot a people are in your corner - and then something like this happens and you see this overwhelming show of support. It's insane! You all make us smile. Thanks to all for staying strong for us.
I'll try and leave with another good quote...this time from Winston Churchill. "Attitude is a little thing that makes a big difference!" What a great quote for us to live by right now! We will stay upbeat and we promise to keep a great attitude about this illness.
Much love peeps,
Scott
P.S. - I didn't send any letters using a carrier pigeon. But it would be ultra-cool if I could, right?
Each day that passes with the news that your loved one has cancer brings a weird dynamic. I feel stronger yet more nervous. Maybe nervous is the wrong word - maybe its anxious. I have great faith that while this will be an arduous journey we will prevail. I am ready to start the journey and amazingly, Elizabeth is as well. She has been so strong through this process, it has left me stunned. You always look at others that are dealing with tragic things in their life and wonder how you would feel if you had to trade places with them. I've always, and I mean ALWAYS, been in awe of how people respond when diagnosed with cancer. It is like a braveness comes over them that astonishes me. I've felt that with Beth...she has taken the news like a champ. She's ready. Let's not get it twisted...we have our moments. But they are much further apart than I imagined.
So - I have to confess that I am slightly obsessed with being prepared for this ordeal. I can't begin to tell you how many blogs, journal articles, and message boards that I have read over the past few days. Ok, so I'm a nerd! I feel like there is so much I am missing even though I've read so much. I want to make sure that I am prepared...not so much with Elizabeth. I want to make sure that I stay steady and as close to grounded as I can be. It's almost an OCD-type condition. Haha. Man, I need to play a round of golf or something. What I have learned, though, is that everyone responds differently. So, we'll take it one day, one treatment, at a time. Seems like the best way to approach this.
For anyone that reads this one day and has a major issue in your life...remember to take a deep breath and realize that there are others who have been there and have pulled through. Every story that we read of those that have made it through cancer treatments and are living and loving life gives us a major jolt of inspiration. And each of these stories keeps the positive vibes flowing. That, combined with our trust in God, will see us through.
I want to continue to thank everyone for the support. I have talked, texted, emailed, facebooked (is that a word? Lol), and communicated via carrier pigeon (you know who you are...don't deny it!!!) with sooooo many people. You have all warmed my heart and filled Elizabeth and I with joy. You always feel that a lot a people are in your corner - and then something like this happens and you see this overwhelming show of support. It's insane! You all make us smile. Thanks to all for staying strong for us.
I'll try and leave with another good quote...this time from Winston Churchill. "Attitude is a little thing that makes a big difference!" What a great quote for us to live by right now! We will stay upbeat and we promise to keep a great attitude about this illness.
Much love peeps,
Scott
P.S. - I didn't send any letters using a carrier pigeon. But it would be ultra-cool if I could, right?
Tuesday, September 20, 2011
Another quick update 9/20
Just found out that Beth is scheduled to have her PET scan on Thursday morning at 7:30. This will go a long way into determining the stage that the cancer is at. We are, obviously, very hopeful that it is just a Stage II. I think that we'll probably get the Echo done that day as well. We are doing the bone marrow biopsy on Friday morning at 8:30. Say a little prayer for her this day. This is a fairly uncomfortable procedure and the hope is that the cancer hasn't spread to the marrow. My fingers are tightly crossed (along with my toes)!
The big news...chemo begins next Wednesday. (I am taking deep breaths just writing it!) This is what we want but the reality is slapping us square in the face! Well - time to take the bull by the horns. Grab a Bud Light cuz "Here We Go!"
Ok...last thing for the night. We have had soooo many people ask what they can do to help. So, Elizabeth's really dear friend, Misty O'Conner, set up a thing for people to bring meals to us during her treatments. Now listen...I am not sure if Misty thinks that my cooking will speed up her cancer progression or something. I'm starting to get offended. Not really! Haha. If you feel that you must do something like this then I suppose bringing Beth and the kiddos something to eat wouldn't be the worst thing in the world. The website is TakeThemAMeal.com - you'll have to search for our last name (that's NOEL (that's for you Bamber!!!) and use the password 9487. I am not that naive to believe that we couldn't use the help from time to time so if you want to do that - then I guess feel free to do so. We only like Ruth's Chris Filet Mignon...wink wink! Just kidding, of course. We'd appreciate anything (though your kind thoughts and prayers are best!)
Again, thanks for all the love and support. You guys and gals are the bestest!
Scott
The big news...chemo begins next Wednesday. (I am taking deep breaths just writing it!) This is what we want but the reality is slapping us square in the face! Well - time to take the bull by the horns. Grab a Bud Light cuz "Here We Go!"
Ok...last thing for the night. We have had soooo many people ask what they can do to help. So, Elizabeth's really dear friend, Misty O'Conner, set up a thing for people to bring meals to us during her treatments. Now listen...I am not sure if Misty thinks that my cooking will speed up her cancer progression or something. I'm starting to get offended. Not really! Haha. If you feel that you must do something like this then I suppose bringing Beth and the kiddos something to eat wouldn't be the worst thing in the world. The website is TakeThemAMeal.com - you'll have to search for our last name (that's NOEL (that's for you Bamber!!!) and use the password 9487. I am not that naive to believe that we couldn't use the help from time to time so if you want to do that - then I guess feel free to do so. We only like Ruth's Chris Filet Mignon...wink wink! Just kidding, of course. We'd appreciate anything (though your kind thoughts and prayers are best!)
Again, thanks for all the love and support. You guys and gals are the bestest!
Scott
First Doctors Visit
Hi all - we got to meet our oncologist today. His name is Dr. Arnel Pallera. He is a very nice man - probably in his mid-40's. He seemed very kind and gentle which made Elizabeth and I feel a nice level of comfort with him. On to the juicy details...
Dr. Pallera wants us to do an ECHO (http://en.wikipedia.org/wiki/Echocardiography), a PET scan (http://en.wikipedia.org/wiki/Positron_emission_tomography) and bone marrow biopsy (http://en.wikipedia.org/wiki/Bone_marrow_biopsy) later this week. The reason for the short turnaround is because he wants us to begin chemotherapy next week. We were a little surprised that he wanted to move so quickly, but we can't fault him for wanting to get rid of this "stuff" so soon. We are obviously happy about that. I believe that Dr. Pallera wants what's best for us so I believe that his approach is aggressive but correct. We will likely have more answers later this week as we do the final "staging" of the disease. Dr. Pallera believes that we are at least at Stage II. Not exactly what we wanted to hear but I think that I already knew this - strictly because I knew it wasn't just in one or two nodes.
I have been doing a bunch of reading (unfortunately not about LSU football or Saints football) and have come across a great blog about a young woman's experience with ABVD. ABVD stands for Adriamycin, Bleomycin, Vinblastine, and Dacarbazine. Yikes! These just SOUND toxic! However, this is the tried and true, gold-standard for treating Hodgkin's. It is what has been used for 40 years and nothing has garnered better outcomes. They've tried but ABVD is very successful. Jenny's blog is great...it really taught me a lot and will help us in knowing what to expect with chemo. If you want to read more about her experience, you can find her blog at http://hodgkindisease.wordpress.com/.
Dr. Pallera thinks that if the cancer remains classified as Stage II, then he would likely only need 3 cycles (4 weeks per cycle, treatments given every two weeks) of chemo and 4-6 weeks of localized radiation. The ABVD is given two drugs at a time with each treatment occurring every two weeks (so the AB on day 1 and the VD (not the STD!!!) on day 15). I've read that the treatments take a few hours and that she will be tired afterward! I suppose I'll play nice and let her rest for a couple of days after!!! Haha. We hope that the hair loss will be minimal but we are being proactive...wig shopping might be fun! I know this much - if she loses her hair then mine is coming off too. We are in this together! All in! Ok, just Beth and I are all in - I don't think we'll be ready to shave Anna or Lyla's head just yet! I just hope that Anna doesn't cut Lyla's hair one day...no sense in us shaving hers! Obviously, we want to keep the number of treatments to a small amount. The same holds true with radiation. Dr. Pallera told us that 15-20 years ago, it was standard to treat Hodgkin's lymphoma with radiation only. The success rate was great but the long-term side effects were more severe and that risk of secondary cancers went up. Chemotherapy with lesser, targeted radiation has the same success rate with much more effective long term outcomes. And our goal is not to be alive in 5 years...it's to be alive to see great-grandchildren! And we will. I know we will.
This weekend was a roller coaster - high, low, and everywhere in between. We were nervous and still are but we now have our map sketched out! After this week - it will become much more defined. We are thankful for the absolutely stunning display of support you all have given. It makes me smile big and wide to know how many people are out there pulling for her. I promise this to everyone that reads this blog and loves that precious angel - I am going to do everything in my power to make sure that by this time next year she is cancer-free and living a normal, healthy life. Hell, she is going to outlive me - mark my word! And I'm not going anywhere anytime soon!
Thanks again to everyone. I will let everyone know when the treatments will start. We'll know more late this week.
I'll leave with this:
The great Roman poet, Horace, once wrote, "Adversity has the effect of eliciting talents, which in prosperous times would have laid dormant."
I have no doubt in my mind that this great challenge will bring out the very best in Elizabeth for she has many talents that she doesn't realize. I, for one, can not wait to see how she amazes me next!
Until next time...au revior!
Scott
Dr. Pallera wants us to do an ECHO (http://en.wikipedia.org/wiki/Echocardiography), a PET scan (http://en.wikipedia.org/wiki/Positron_emission_tomography) and bone marrow biopsy (http://en.wikipedia.org/wiki/Bone_marrow_biopsy) later this week. The reason for the short turnaround is because he wants us to begin chemotherapy next week. We were a little surprised that he wanted to move so quickly, but we can't fault him for wanting to get rid of this "stuff" so soon. We are obviously happy about that. I believe that Dr. Pallera wants what's best for us so I believe that his approach is aggressive but correct. We will likely have more answers later this week as we do the final "staging" of the disease. Dr. Pallera believes that we are at least at Stage II. Not exactly what we wanted to hear but I think that I already knew this - strictly because I knew it wasn't just in one or two nodes.
I have been doing a bunch of reading (unfortunately not about LSU football or Saints football) and have come across a great blog about a young woman's experience with ABVD. ABVD stands for Adriamycin, Bleomycin, Vinblastine, and Dacarbazine. Yikes! These just SOUND toxic! However, this is the tried and true, gold-standard for treating Hodgkin's. It is what has been used for 40 years and nothing has garnered better outcomes. They've tried but ABVD is very successful. Jenny's blog is great...it really taught me a lot and will help us in knowing what to expect with chemo. If you want to read more about her experience, you can find her blog at http://hodgkindisease.wordpress.com/.
Dr. Pallera thinks that if the cancer remains classified as Stage II, then he would likely only need 3 cycles (4 weeks per cycle, treatments given every two weeks) of chemo and 4-6 weeks of localized radiation. The ABVD is given two drugs at a time with each treatment occurring every two weeks (so the AB on day 1 and the VD (not the STD!!!) on day 15). I've read that the treatments take a few hours and that she will be tired afterward! I suppose I'll play nice and let her rest for a couple of days after!!! Haha. We hope that the hair loss will be minimal but we are being proactive...wig shopping might be fun! I know this much - if she loses her hair then mine is coming off too. We are in this together! All in! Ok, just Beth and I are all in - I don't think we'll be ready to shave Anna or Lyla's head just yet! I just hope that Anna doesn't cut Lyla's hair one day...no sense in us shaving hers! Obviously, we want to keep the number of treatments to a small amount. The same holds true with radiation. Dr. Pallera told us that 15-20 years ago, it was standard to treat Hodgkin's lymphoma with radiation only. The success rate was great but the long-term side effects were more severe and that risk of secondary cancers went up. Chemotherapy with lesser, targeted radiation has the same success rate with much more effective long term outcomes. And our goal is not to be alive in 5 years...it's to be alive to see great-grandchildren! And we will. I know we will.
This weekend was a roller coaster - high, low, and everywhere in between. We were nervous and still are but we now have our map sketched out! After this week - it will become much more defined. We are thankful for the absolutely stunning display of support you all have given. It makes me smile big and wide to know how many people are out there pulling for her. I promise this to everyone that reads this blog and loves that precious angel - I am going to do everything in my power to make sure that by this time next year she is cancer-free and living a normal, healthy life. Hell, she is going to outlive me - mark my word! And I'm not going anywhere anytime soon!
Thanks again to everyone. I will let everyone know when the treatments will start. We'll know more late this week.
I'll leave with this:
The great Roman poet, Horace, once wrote, "Adversity has the effect of eliciting talents, which in prosperous times would have laid dormant."
I have no doubt in my mind that this great challenge will bring out the very best in Elizabeth for she has many talents that she doesn't realize. I, for one, can not wait to see how she amazes me next!
Until next time...au revior!
Scott
Monday, September 19, 2011
Quick update 9/19
Hi everyone - quick update. I thought we'd be able to see the doctor today but no dice. However, we have an appointment with Dr. Pallera tomorrow at 12:30. We are so thankful to have great friends and family that made this appointment happen so quickly. Special thanks to our aunt, Danita, and Tiffany for making the calls and getting us in at West Clinic.
And to everyone that has said a prayer for Elizabeth or kept her in your thoughts - we can't say thank you enough. We've talked to so many people and can just feel the outpouring of support. We appreciate it so much.
Keep your eyes peeled for the next update...hopefully tomorrow afternoon. We can't wait to meet Dr. Pallera and start our road to recovery.
Thanks and much love!
And to everyone that has said a prayer for Elizabeth or kept her in your thoughts - we can't say thank you enough. We've talked to so many people and can just feel the outpouring of support. We appreciate it so much.
Keep your eyes peeled for the next update...hopefully tomorrow afternoon. We can't wait to meet Dr. Pallera and start our road to recovery.
Thanks and much love!
Sunday, September 18, 2011
Diagnosis Update
Hi everyone. This is Scott - Elizabeth's husband for those that don't know. I wanted to start a blog so that we could keep everyone up to date on her status and the things that we are dealing with. I hope that you enjoy reading this blog because it won't be one of doom and gloom. We are tackling this thing head-on and we will beat this thing. I know Elizabeth is a very strong woman and she will have this minor setback licked in no time. On to the diagnosis...
It's Hodgkin's disease (aka Hodgkin Lymphoma). It seems to be the most rare form of lymphoma, but is most common for her age group. Luckily for us, the prognosis of Hodgkin's lymphoma is really good and it is a blessing that she doesn't have one of the many types of non-Hodgkin's. The cure rate is really outstanding so that has us in good spirits.
Recently, Elizabeth discovered that she had some swollen lymph nodes in her neck, specifically the one located behind her right collarbone. We saw a doctor and she began a round of antibiotics. There was no change so we went to see another doctor. He took a CT scan of her upper neck and chest and found a few of her lymph nodes enlarged. He couldn't biopsy it so we had it removed on Tuesday, September 13th. Then we played the waiting game. Unfortunately, on Saturday September 17th, Dr. Ellis called and broke the news to me...Hodgkin's Lymphoma. It certainly wasn't what I wanted to hear but I know deep down that this wasn't the worst news. I reluctantly waited until Elizabeth got home from work (I certainly didn't want her to drive home knowing this news) to tell her.
We talked for a good portion of the night. We had an interesting conversation but mainly focused on staying positive and remaining upbeat. We both know that positive thinking and prayer will keep us on the right track. We know we will beat this and that is the most important thing. I suppose that it is a good thing that we know people in the medical industry as we have several people that are trying to get us in at the West Clinic here in Memphis. We have heard great things about this clinic and are looking forward to meeting our doctor and determining the ideal treatment plan. I think that once we know what the path is then we will feel better about the whole thing.
So, that's where we stand - here on Sunday September 18th, 2011. We appreciate all of the kind words, support, and prayers. And when this is all said and done, we will look back on this journey as one that was a life-changing event. But this life-changing event will be one that makes us so much stronger.
Stay tuned folks - it's going to be a bumpy ride but we are ready. We love all of you very much. Please check back often because I will keep this blog updated so that everyone can just log on and check on Elizabeth. I'm already so proud of her and I can't imagine what I will feel over the coming months because she never ceases to amaze me.
Our best,
Scott and Elizabeth Noel
It's Hodgkin's disease (aka Hodgkin Lymphoma). It seems to be the most rare form of lymphoma, but is most common for her age group. Luckily for us, the prognosis of Hodgkin's lymphoma is really good and it is a blessing that she doesn't have one of the many types of non-Hodgkin's. The cure rate is really outstanding so that has us in good spirits.
Recently, Elizabeth discovered that she had some swollen lymph nodes in her neck, specifically the one located behind her right collarbone. We saw a doctor and she began a round of antibiotics. There was no change so we went to see another doctor. He took a CT scan of her upper neck and chest and found a few of her lymph nodes enlarged. He couldn't biopsy it so we had it removed on Tuesday, September 13th. Then we played the waiting game. Unfortunately, on Saturday September 17th, Dr. Ellis called and broke the news to me...Hodgkin's Lymphoma. It certainly wasn't what I wanted to hear but I know deep down that this wasn't the worst news. I reluctantly waited until Elizabeth got home from work (I certainly didn't want her to drive home knowing this news) to tell her.
We talked for a good portion of the night. We had an interesting conversation but mainly focused on staying positive and remaining upbeat. We both know that positive thinking and prayer will keep us on the right track. We know we will beat this and that is the most important thing. I suppose that it is a good thing that we know people in the medical industry as we have several people that are trying to get us in at the West Clinic here in Memphis. We have heard great things about this clinic and are looking forward to meeting our doctor and determining the ideal treatment plan. I think that once we know what the path is then we will feel better about the whole thing.
So, that's where we stand - here on Sunday September 18th, 2011. We appreciate all of the kind words, support, and prayers. And when this is all said and done, we will look back on this journey as one that was a life-changing event. But this life-changing event will be one that makes us so much stronger.
Stay tuned folks - it's going to be a bumpy ride but we are ready. We love all of you very much. Please check back often because I will keep this blog updated so that everyone can just log on and check on Elizabeth. I'm already so proud of her and I can't imagine what I will feel over the coming months because she never ceases to amaze me.
Our best,
Scott and Elizabeth Noel
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